CAMHS Tics & Tourettes

Tourettes Action (TA): https://www.tourettes-action.org.uk/78-young-people.html

Tourette Association of America: https://tourette.org/

Great Ormond Street Hospital for Children: https://www.gosh.nhs.uk/conditions-and- treatments/conditions-we-treat/tourette-syndrome

  • Provides helpful resource packs for young people on topics including:
    • TS and anger management
    • TS and sleep
    • TS and the future

The following books are recommended by Tourettes Action (https://www.tourettes- action.org.uk/rescat-2-children--young-people.html):

  • Piper Saves a Pigeon, by Shannon Kernaghan (for ages 6+)
  • Why Do You Do That?, by Uttom Chowdhury and Mary Robertson (for ages 8-16)
  • Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People by Dylan McKinley (for ages 10+)
  • Tic Talk: Living with Tourette Syndrome: A 9-Year-Old Boy's Story in His Own Words, by Dylan Peters (for all ages)
  • The Tourette’s Survival Kit: Tools for Young Adults with Tics, by Tara Murphy and Damon Millar (for teens)
  • Can I Tell You About Tourette Syndrome?, by Mal Leicester (ideal for young people aged 7 upwards, as well as parents, friends, teachers and other professionals working with children with TS)
    • Available in Redbridge Libraries: https://llc.ent.sirsidynix.net.uk/client/en_GB/redbridge/search/detailnonmod al/ent:$002f$002fERC_2092_680$002f0$002fERC_2092_680:OVERDRIVE:d98 3e399-8a18-4aae-a28d- 488ae88435ae/one?qu=Can+I+Tell+You+About+Tourette+Syndrome%3F&lm= REDBRIDGE

 

Tourettes Action: https://www.tourettes-action.org.uk/

  • Provides basic information on Tourette’s (symptoms, causes, etc.), including advancements in research.
  • Lists upcoming events and campaigns related to TS.
  • Hosts interactive parent workshops across the UK including chaired discussions between parents, key speakers, and practical information and support regarding tic management, behavioural management and school.
  • Also features a useful Resource Library, with leaflets available for download on topics including:

 

Tourette Association of AmericaProvides a useful set of tools for parents: https://tourette.org/resources/overview/tools-for-parents/

Great Ormond Street Hospital for Children: https://www.gosh.nhs.uk/conditions-and- treatments/conditions-we-treat/tourette-syndrome

  • Provides helpful resource lists for parents, available for download; topics include:
    • TS and school
    • TS and sleep
    • TS and helping your child make friends

Child Mind Institute: https://childmind.org/article/tics-and-tourettes/

  • A helpful introduction to tics and TS, including information on what parents can do, and what kind of treatment may be appropriate for children.

CHUMS: http://chums.uk.com/tics-and-tourettes/

  • Provides a handy list of suggestions specifically for parents, as well as a succinct overview of tics and TS.
  • Includes a “Useful reading for parents” section at the end.

The Association for Child and Adolescent Mental Health (ACAMH): https://www.acamh.org/

  • Offers a podcast series called “In Conversation Tourettes Syndrome” which focuses on TS
  • Episodes include:
    • ‘Teens, Tics, and Tech’ featuring Camilla Babbage, PhD researcher in Applied Psychology at the University of Nottingham, who gives an overview of the development of an App for young people with tics, with the specific aim of improving wellbeing.

Neuro-diverse.org: https://www.neuro-diverse.org/

  • Offers “Behavioural Therapy for Tics Institute: Non-clinician behavioural therapy workshops”, an online webinar for non-clinicians such as parents and teachers.
  • Learn about behavioural therapy, the facts, myths and strategies which could be used at home or in school.

·Dates:

  • Other dates TBC for 2021 and 2022

·Price:

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Tourettes Action: https://www.tourettes-action.org.uk/76-support-in-school.html

  • They provide bespoke advice and training opportunities for schools, in-house or via video conferencing.
  • TA have also put together an informative collection of videos for individuals, families and education professionals to help widen understanding and strategies to support children with Tourette’s in school: https://www.youtube.com/playlist?list=PL1Suwo02Q3YbmQGSAfkdlavPv2OeVePM3

Tourette Association of America: https://tourette.org/resource/tics-classroom-educators- guide/

  • Tics in the Classroom: An Educator’s Guide provides helpful background information and tips for educators working with students with TS.
  • Also provides tools designed to assist educators and support staff in recognizing symptoms of Tic Disorders and TS, and to serve as a guide towards developing effective support plans: https://tourette.org/resources/overview/tools-for-educators/. Topics include:

Great Ormond Street Hospital for Children: https://www.gosh.nhs.uk/medical- information/search-medical-conditions/tourette-syndrome/tourette-syndrome- information-pack

  • Offers helpful resource packs for teachers, including:
  • TS and ADHD in the classroom
  • TS and bullying at school
  • Tips for managing tics in the classroom
  • TS and OCD in the classroom

 

 

The Association for Child and Adolescent Mental Health (ACAMH)

 

  • Offers a podcast series called “In Conversation Tourettes Syndrome” which focuses on TS
  • Episodes include:
    • ‘Education, and Educating, about Tourettes’ featuring Lucy Toghill, education manager of Tourettes Action