Cancer Support
The National Cancer Institute
- Online PDF “When your parents have cancer: a guide for teens”, contains information on…
- What is cancer?
- Cancer treatments
- What your parents may be feeling
- Taking care of yourself
- Finding support
- Link: https://www.cancer.gov/publications/patient-education/when-your-parent-has-cancer.pdf
- Online PDF “When your brother or sister has cancer: a guide for teens”
- Webpage: “Support for teens when a family member has cancer” has information on how to cope, how to manage stress, what to expect, findings support and much more
Macmillan
- Support for those looking after someone who has cancer https://www.macmillan.org.uk/information-and-support/audience/looking-after-someone-with-cancer.html#162026
- Cancer information videos: https://www.macmillan.org.uk/information-and-support/resources-and-publications/videos
- Emotional Support for Family and Friends: https://www.macmillan.org.uk/cancer-information-and- support/supporting-someone/emotional-support-for-family-and-friends
- Free phone lines: 0808 808 00 00 (7 days a week 8am-8pm, free service)
- MacMillan also offers information and support when someone you love dies of cancer
- Webpage: “Support with Grief” https://www.macmillan.org.uk/cancer-information-and-support/supporting-someone/coping-with-bereavement/support-with-grief
- Webpage: “Remembering someone” https://www.macmillan.org.uk/cancer-information-and-support/supporting-someone/coping-with-bereavement/remembering-someone
- Webpage: General tips and advice on how to explain cancer to children:
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Includes specific advice for children with learning disabilities and Autism Spectrum Disorders
- Link: https://www.macmillan.org.uk/information-and-support/coping/talking-about-cancer/talking-to-children/explaining-cancer.html
- Webpage: Understanding children and teenagers’ reactions
- Provides information on how children and teens or different ages react to the knews that a loved one has cancer
- Link: https://www.macmillan.org.uk/cancer-information-and-support/diagnosis/talking-about-cancer/understanding-children-and-teenagers-reactions
- In-depth online guide for talking to children about cancer (+ sections for different age groups)
- Online Booklet “Preparing a child for loss” produced by Winstons wish for parents who have a diagnosis of terminal cancer and are nearing the end of life
- Aims to support them in having the difficult conversation to prepare a child for the death of a parent or close family
- Link: https://be.macmillan.org.uk/be/p-25033-preparing-a-child-for-loss.aspx
Riprap
UK website designed to offer support to teenagers of all ages who have a parent affected by cancer.
- Provides webpages with information on cancer: http://www.riprap.org.uk/knowledge/
- Provides additional support for young people including
- A forum to help you connect with other young people going through similar experiences
- An Advice column with FAQ’s
- Email contact if you have a query or need personal advice/emotional support (respond within 48 hours)
- And much more…
- Link: http://www.riprap.org.uk/support/
Winston’s Wish
Provides support for children and young people who have lost a parent
- Freephone National Helpline: free and confidential service that offers therapeutic advice following a bereavement—08088 020 021
- Online chat: helps you talk about your grief and manage it. Opened Tuesdays and Fridays from 1-5pm
Hope
Offers online support for young people aged 11+ who have a close family member diagnosed with a life- threatening illness
- Confidential 1-2-1 online chats with trained professionals (for children aged 13+)
- Closed Facebook community groups (for children aged 13+)
- Conversations to support teams on Skype (for children aged 11+)
- Link: http://www.hopesupport.org.uk/online-support/
Maggie’s
Offer online emotional and practical support for children and young people whose parents have cancer.
- Kids days (for ages 7-13) and Teen Days (for ages 14-18)
- Dates of when the groups are running are posted on their website under “What’s On” as well as their social media pages.
- Not run at all the hospitals.
- Run in the Maggie’s West London Charing Cross Hospital, Fulham Palace Road, London W6 8RF.
- Tel: 020 7386 1750
- Link: https://www.maggies.org/our-centres/maggies-west-london/
- Information on what it means to be a young carer: https://www.maggies.org/cancer-support/supporting-someone-cancer/young-carers/
- Online community: a place where anyone with or worried about cancer can share their experiences and ask questions
- Link: https://community.maggiescentres.org/home
- Webpage: Talking to children
- Includes information on how best to tell them, how to help them and how their behavior can manifest further
- Link: https://www.maggies.org/cancer-support/managing-socially/talking-children/
Zig Zag Children’s Psychological service (Waltham Forest and Redbridge)
- Uses play therapy for children aged 3-11 with difficulties surrounding issues of loss, change, and children with family members who have life-limiting illnesses.
- More information on: http://www.paediatricpearls.co.uk/wp-content/uploads/Zig-Zag_3.pdf
- Tel: 020 8539 5592
- When someone very special dies by Marge Heegaard
- When some has a very serious illness by Marge Heegard
- When your Mum or Dad has cancer by Ann Couldrick (explains cancer in a simple way, covers many questions children might ask)
- When someone has a very serious illness: children can learn to cope with loss and change (activity book for children 6-12) by Marge Heegaard
- My parent has cancer and it really sucks by Maya Silba and Marc Silva
Marie Curie
- Webpage: Telling a child someone is dying
- Contains information on…
- Talking to children about death
- How telling a child might help you
- Getting support with telling them
- Who should be involved, where and when should I tell them?
- How do I begin the conversation?
- Video: Paola’s Story—Talking to my children https://www.youtube.com/watch?v=EjIloF3GQzw&feature=emb_title
- Link: https://www.mariecurie.org.uk/help/support/diagnosed/talking-children/children
- Contains information on…
Cancer Council
Is an Australian cancer charity
- Podcast “Explaining cancer to kids”
- Julie chats to CanTeen’s John Friedsam about different ways to talk about your cancer diagnosis with your kids. We also hear from Suzanne, a mother who ha to explain her breast cancer diagnosis and treatment to her children.
- Link: https://www.cancercouncil.com.au/podcasts/episode-5-explaining-cancer-to-kids-2/
- As Big as it Gets by Julie Stokes and Diana Crossley
- Helps families cope with serious illness of a parent or child
- Provides ideas for parents/carers to explain what is happening to their children.
- Webpage “When a family member has cancer”
- Contains information and advice on helping student cope if one of their family members have cancer, how it might impact a student’s performance, and how schools can hel
- https://www.cancercouncil.com.au/cancer-information/schools-and-teachers/cancer-in-the-school-community/family-cancer/
- Webpage “Talking about cancer in schools”
- https://www.cancercouncil.com.au/cancer-information/schools-and-teachers/cancer-in-the-school-community/talking-about-cancer/
- Webpage “Schools and teachers”
- Offers a range of resources to help you manage the issues raised by cancer in your school
- https://www.cancercouncil.com.au/cancer-information/schools-and-teachers/
General Information
- National Cancer Institute: https://www.cancer.gov/about-cancer/coping/feelings
- Cancer Research UK: Coping emotionally https://www.cancerresearchuk.org/about-cancer/coping/emotionally
Local Support Groups
Macmillan Cancer information and support service
- Barking, Havering and Redbridge NHS trust Rumford
- Whipps Cross University Hospital
- Phone Helpline: 0808 808 00 00
- 7 days a week 8am-8pm
- OrangeLine: local confidential helpline in Redbridge for people who may be bereaved, feeling isolated or lonely
- Offer Information to local services and referrals to local specialists
- Connections to local social/friendship groups
- Call center open 0am-5pm Monday-Friday on 01708 758649
- Tea and Talk at Toby’s by Saint Francis Hospice in partnership with Macmillan cancer support is monthly social gathering for anyone whose life has been affected by cancer.
- For more information please call 01708 758649 or email them at orangeline@sfh.org.uk
- Southend road, Woodford Green
Child Bereavement UK provides support for children and young people up to the age of 25 who are facing bereavement, and anyone affected by the death of a child of any age.
- Information for Primary Schools: provides information on supporting a bereaved student in a primary school, managing bereavement in school, supporting the school and much more
- https://www.childbereavementuk.org/pages/category/primary-schools
- School Information Pack: aims to provide you with support and information when a death occurs in the school community or if the school is facing an expected death
- https://www.childbereavementuk.org/Handlers/Download.ashx?IDMF=a35f83e5-e4ad-49e1-8b01-7e7d55ffa528
Books and Resources
- Books for children in KS1/PS 1-2/5-7 years: https://www.childbereavementuk.org/Handlers/Download.ashx?IDMF=ca0caa99-310a-400c-a0f5-a5cf68ea2a60
- Books for children in KS2/PS 3-7/7-11 https://www.childbereavementuk.org/Handlers/Download.ashx?IDMF=5b00271c-c972-416a-aab0-69c402c2bf2d
- Elephants tea party: school initiative to raise topics of death and grief in sensitive and age-appropriate way, helps increase emotional literacy and life skills https://www.childbereavementuk.org/Pages/Category/elephants-tea-party
- Information for Secondary Schools: provides information on supporting a bereaved student in a secondary school, managing bereavement in school, supporting the school and much morehttps://www.childbereavementuk.org/pages/category/secondary-schools
- If you would like to find out more about Child Bereavement UK’s training or get more information for staff, please email our training team: training@childbereavementuk.org
- Currently they are offering several webinars https://www.childbereavementuk.org/webinars
Massachusetts General Hospital
- Have developed a toolkit to help educators support children of parents with serious illnesses https://www.mghpact.org/assets/media/documents/MGH-Cancer-Educator- Toolkit.pdf
Teenage Cancer Trust
Is a UK charity dedicating to helping young people aged 13-24 deal with cancer.
- They have a webpage with lesson plans to educate children on cancer: ideal for students in Year 9 or S2 students
- Contains informational videos and a PDF lesson plan
- Link: https://www.teenagecancertrust.org/about-us/what-we-do/education-awareness-resources/what-cancer-lesson-plans?_ga=2.214339991.1612535540.1597825434-1654958873.1597825434
- They also have lesson plans tailored to HPC and Cervical Cancer which is ideal for Year 8 and S1 student
- https://www.teenagecancertrust.org/about-us/what-we-do/education-awareness-resources/hpv-and-cervical-cancer-lesson-plans?_ga=2.50822057.1612535540.1597825434-1654958873.1597825434
Cancer Research UK
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PDF “What is Cancer” is a science lesson plan with links to PSHE https://www.cancerresearchuk.org/sites/default/files/what_is_cancer_teachers_notes.pdf